Having a hard time.

Sign Up Help yourself by helping others!

Join A Support Group

You're almost registered--join at least one group to get started.
Posted in Group: 

I am having a difficult time coming to terms with the fact that I may just have to live with back pain the rest of my life. Being only twenty three and engaged, I want to be able to do all of the fun things people my age are doing and be able to enjoy our honeymoon where we will be going to Italy. I may be getting way ahead of myself, it's only been a year of working on my back but it doesn't seem to be getting much better. I'm not sure how to deal with this.

 

By marcie on Sun, 12-16-12, 21:40

You are in my prayers. it is a very sensitive area, be careful and with time you will feel stronger. One of my relative tried acupuncture and she started to feel a little better, each case is different. Wishing you happiness. God bless you.

By kokokoala on Tue, 12-18-12, 14:14

Thank you so much. I really hope I do. My physical therapists say I'm getting stronger but I don't really see it making much of a difference. I don't know though. I'm definitely not giving up. Just really frustrated and kind of scared, honestly.

By dagmastr on Sun, 12-23-12, 04:50

I was in pretty much the same situation with reactive arthritis, I'm almost 50 now but my chronic pain problems started in my 20s. The best advice I can give is try to do all the out of country trips ,boating ,cycling ect. now, you can take trips in the USA when your older, I did a lot of things knowing that arthritis and back problems get worse over time and I'm glad I did, now I'm going to go see things I haven't seen in the US and I'm looking forward to it. You may find in the years ahead a more effective treatment may become available. I know it sucks and I wish I could say you'll get used to it but you will get better in working around chronic pain. Just try to make the most of things and try to take advantage of anything that will give you relief be it medication, topical patches/creams, exercise and hot/cold packs to get the blood flowing in the area. Just remember things could be a lot worse as far as health problems go!

Support Points: 45
Badges 
White Belt in Support
Offline
Groups: None
By darkchild83 on Tue, 12-18-12, 14:46

I am stil praying for you and that you will get better and beable to do all the fun things trust me i do. My physical thearphy is going ok but that down fall to is that i can not lift my knee up on my own and i can't lock it in place. So i am walking with a kindof rubber knee if you want to call it that. But you are strong and i kno that you can and will make it no matter what ......

Support Points: 6535
Badges 
Purple Belt in SupportBlue Belt in SupportGreen Belt in SupportRed Belt in SupportOrange Belt in SupportAqua Belt in SupportYellow Belt in SupportWhite Belt in Support
Offline
By Roxbury on Tue, 12-18-12, 15:09

I know the type of pain you are feeling and hope you start feeling better soon. Back pain is horrible to deal with. Three years ago I had a broken back and underwent surgery. Ended up having a spinal fusion. It took over a year to recover from the pain resulting from the damage and surgery. But in time, it goes away, and whatever residual pain there is, it becomes managable. In a strange sort of way, it is a friendly reminder to me how lucky I was that I didn't end up paralyzed. So, give yourself LOTS of time to heal up. And see a good Orthopedist.

Support Points: 775
Badges 
Orange Belt in SupportAqua Belt in SupportYellow Belt in SupportWhite Belt in Support
Offline
By kokokoala on Fri, 12-21-12, 21:10

Thank you Dark. I'm glad your physical therapy is going alright. I really hope they are able to strengthen the muscles you need to be able to use your knee more properly again. You're right Rox, the pain is horrible. :/ How did you deal with not being able to do simple tasks? I went from holding a full time job, a part time job and going to the gym at least three times a week to not even being able to do laundry without my back hurting. It's a huge jump. I'm so glad you were able to have something done for you so you can get back to your life. :]

By darkchild83 on Sat, 12-22-12, 06:09

Yea that makes two of us just working on my nerves so that they can fire right and i be able to lock my knee up and be able to bend it right and say good bye to this limp....

Support Points: 6535
Badges 
Purple Belt in SupportBlue Belt in SupportGreen Belt in SupportRed Belt in SupportOrange Belt in SupportAqua Belt in SupportYellow Belt in SupportWhite Belt in Support
Offline
By Brandy40 on Sun, 12-23-12, 02:02

I understand living with back pain..i have since the fifth grade...accident on the playground, my mama took me to a chiropractor at that young age, I honestly think it made it worse. I've been in a couple of car accidents in the passed yr which I didn't go to the hospital. And I was assaulted w intent to murder in 2009, the guy crushed my face on one side & broke my jaw on the other. I tried downplaying any other injury. I went to the hospital told them I fell, but my sister had already called the police on him. So, the state pressed charges. He's out of prison, & he assaulted me earlier this yr a couple of times...yeah I know dumb me....for going bk around him. But ine incident he choked me out & threw me & I hit a metal frame in the center of my bk....& it was like I was paralyzed for a few minutes...I still hv the scar & it's an indention in my bk. I hv yet to get treated for it. My fault. I was supposed to go to a pain clinic the first 2012, I ended up cancelling twice. Cuz, sometimes I can hardly walk to the bathroom. I just turned 40, but this has been going on for a long while. My hips popping, & it's almost like they pop out of joint. Which I've had this fractured hand for over a month, one urgent care turned me away...so I got upset & went home. But, last wk I was coming from the dentist who is gonna replace my teeth on one side that he knocked out w partials, so I decided I was driving by another "urgent care"....So, I went & I still hv a fracture, next wk I'm going to a orthopedic dr, for my hand & my hips...& hopefully he can give me some insight on my bk pain as well. Thx for reading. Another thing, would smbdy tell me how to put a picture on ur profile? I do believe I've lost my pics that were on the computer. =)

Just looking for somebody to share what they're going through, been through... somebody that understands, & doesn't remind me how 'damamged' I am, I feel blessed, to have the strength to have made it this far. Although I'm so lonely,mostly by my fault..fo

By tracycict on Mon, 12-31-12, 00:37

I have been struggling with back pain for about 15 years, with going through all the different narcotic medications and the addiction that went along with that. I've tried physical therapy, pain blocks, chiropractors and different types of stretches over the years as well. I finally came to the conclusion that this is something I'm just going to have to learn to live with. However, a friend suggested this to me and I broke down and ordered a Tens Unit, the electrode stimulus machine that you stick the little sticky pads to your back or wherever your pain is and it sends a small shock in between the two pads. You can control the intensity of the shock or how it pulses and WOW it has helped me tremendously. I can clip it on my belt and wear it out while I am doing my everyday tasks. I always thought they would be too expensive and that is why I never tried to find one,but I found a brand new one on Amazon for $40 dollars and it is high quality. It is just a suggestion but this has really helped me. There are many others just like this one for about the same price, which they are brand new with warranty. I figured for $40 dollars it is worth a try, and I am glad I did. I'm not trying to sell you one of these but if you are interested I can point you in the right direction... so just lemme know... I hope you find something that works for you to. Tracy

"Live Life...There is no take two!" ~~~~~ "The end is just a new beginning"

By WhitewolfD on Sat, 01-12-13, 20:08

Hi...I can relate, to your situation. I became majorly impaired, about 4-6 years ago; I suffer from degenerative disc disease & spinal stenosis. I am only 46,& cannot walk without a cane, & not for more than a few feet; before I need my wheelchair. ...I have walked all my life, before. I used to be very athletic.
Now, there's nothing they can do for me, until I'm flat on my back. ...Then, it's major surgery.
Yes, it bums me out; whom are we kidding?? ~It severely depresses me.... But, I am getting a more positive perspective on things, lately! I figure life's too short/and, I still wanna live my life, to it's fullest. I can take nothing for granted ...it could be worse; ALWAYS.
I know, it's extremely difficult, to get to your place of peace, sometimes ...but I want to encourage you, that you're not alone. ...We're in the fight with you, sister!!
And, if you ever need to talk...let me know. Take care.

Support Points: 40
Badges 
White Belt in Support
Offline
By dare on Mon, 01-14-13, 18:16

think positive always. tha tis the best advice i can give. I was very young when pain took hold of me (I cannot remeber pain free since age 9) at 14 i was in 4 car accidents. yep riding wioth morons drinking lol. in my 20's i was told i would never work and i did manual labour for over 25 years. at age 46 i was on a disability and on a cane and at times a wheel chair and told i would never work again.

POSITIVE THINKING i imagined my body healing when all gave up . i imagined my body working when the pain overwhelmed me. i prayed for guidance and doors opened and i walked through those doors to fine a path back to health.

last year i went back to work one daya week at an auction mart. in septemeber a 400 pound heifer charged me. spinning me around and flinging me four feet into a plank fence where my head, shoulder and arm slammed hard. as i lay on the ground in excruciating pain i met the helifer eye to eye and relised i was in trouble. i prayed to GOd to help me and he kept the heifer frooze in her spot long enough for me to pull my right side up on the fence with my left limbs where the heifer charged and connected my back side.

i was offered another job that day and better money and i sat down and laughed for i told them i wish they had asked me 24 hours sooner. well i took the job and Workers compensation bopard decided i had to jumo rediculous hoops. to ge tme back to where i was prior. two months WCB was creating more pain forcing me to attend 6 hours intense therapy a week that set my fibromialgia and arthritis into major flares. i final just said enough i am working and i know my body.

i used braces tempory to manage pain for a period weaning myself off. i had a knee brace, back brace and tenis elbow brace. i am brace free, drug free and workign on being able to runb again.

how does that go now oh ya "ya can't keep a good woman down". our health is our health and we must embrace it and strive to work through the impossible.when we give into our pain and accept defeat only then have we lost. listen to the body and hear it and then you can heal it. we all have power within.

postive thinking always overcomes. one door does not open move on to the next . do not sit in a dark room and accept defeat. had i accepted defeat i would have been hooped at age 14
hugs dare

I learnt:Life is what we make it , I can either embrace it whole heartedly or choose to let it to continuely weigh me down. New motto: unload when safe , dump completely others and punch holes where i can to let the rest seep out.

Support Points: 20815
Badges 
Brown Belt in SupportPurple Belt in SupportBlue Belt in SupportGreen Belt in SupportRed Belt in SupportOrange Belt in SupportAqua Belt in SupportYellow Belt in SupportWhite Belt in Support
Offline
Groups: Narcissist, PTSD
By tracycict on Sat, 01-19-13, 01:34

Very positive outlook on the things you have been through in your life. I to am finding out that mind over matter is sometimes the best medications. I had a serious back injury 14 years ago and went through all the physical therapy, drugs, pain blocks, epidurals and you name it, including drug addiction from pain medications. They wanted to do surgery and I said no way. I eventually got to the point that I wanted a better life and got off of the drugs and used a cane for a time. I still have my bad days but I don't let them get me down. Those doors you speak of are real and you just have to keep opening them and facing what is in front of you. Its how you face those things that make all the difference, and you are the epitomy of a positive person who made a choice. Good for you.... Tracy

"Live Life...There is no take two!" ~~~~~ "The end is just a new beginning"

By Brandy40 on Sun, 03-17-13, 22:01

I love your attitude & outlook. I wish u could tell me how you did it! =)

Just looking for somebody to share what they're going through, been through... somebody that understands, & doesn't remind me how 'damamged' I am, I feel blessed, to have the strength to have made it this far. Although I'm so lonely,mostly by my fault..fo

By WhitewolfD on Tue, 01-15-13, 07:06

Thank you, for your healing & encouraging words..., dare.

Support Points: 40
Badges 
White Belt in Support
Offline
By Crystal874 on Sat, 01-19-13, 00:18

I know EXACTLY how you feel. I am 22 and have been dealing with back pain for a yr and a month now and it limits everything I do. It is extremely stressful and scary bc I don't know if I'll ever be able to do fun things again. Nor do I know if the pain will ever really go away. It sucks because I work at a gym and have to see everyone else that is young and capable of doing physical activities. It is very hard, and I believe that the reason we have to go through this is because we are very strong individuals. I'm sorry because I can't say that things will get better soon, but have you been to a specialist? Or had any x-rays, MRI's, etc to know exactly what is going on with your back? It is a very scary experience and hard for anyone our age to even begin to understand what we are going through. I just want to let you know that I am here if you ever need to talk. And I know what you are going through. Much love,

~Crystal

Support Points: 240
Badges 
Aqua Belt in SupportYellow Belt in SupportWhite Belt in Support
Offline
By kokokoala on Sat, 01-19-13, 10:47

Thank you all. You have all provided me with amazing thoughts and words and I really appreciate it. I am feeling a lot better about my conditions lately. :]

By Dwalls052408 on Mon, 01-21-13, 23:14

Can nyone help with some coping skills for chronic pain, fibro nd nerve pain? I feel like I'm at my wits end!

Donna

Support Points: 65
Badges 
White Belt in Support
Offline
Groups: Chronic Pain
By Dwalls052408 on Mon, 01-21-13, 23:15

No one seems to understand my painz

Donna

Support Points: 65
Badges 
White Belt in Support
Offline
Groups: Chronic Pain
By dare on Mon, 03-18-13, 04:11

chronic pain is never an easy one ot overcome but the mind is the greatest gift we have to deal with it. i use faith to help share my pain and mind images of healing within. meds do not help enough so i try not to consum them. my back i used to trust chiropractors too but have learnt these past 15 yrs i am doing better when no one is yardingme around manipoulating me.

fibro is nasty when the nerve ends strike. again i use mind control and pray it does not last to long ht eflares. nerves from stress is the worst so destressing is important. i cannot say how impostant it is to destress. the more the pain hits the more you will feel stress so you have teach your mind to do wha tit does not want too. relax so your body can relax.

hugs dare

I learnt:Life is what we make it , I can either embrace it whole heartedly or choose to let it to continuely weigh me down. New motto: unload when safe , dump completely others and punch holes where i can to let the rest seep out.

Support Points: 20815
Badges 
Brown Belt in SupportPurple Belt in SupportBlue Belt in SupportGreen Belt in SupportRed Belt in SupportOrange Belt in SupportAqua Belt in SupportYellow Belt in SupportWhite Belt in Support
Offline
Groups: Narcissist, PTSD
By sheeva on Mon, 03-18-13, 06:17

Hi, You shouldnt have to resign yourself to being in pain, you are way too young. I dont know what kind of issue you have, or what you have tried, but there is always an answer for everything. You may not hear about the bestanswer form your mainstream doctors either. If you havent trieacupuncture yet, you should. I am an Acupuncturist,and I can tell you I have seen some things really turn around. Depending on what your back is like, there is also Biopuncture, a great option for any soft tissue damage. Check into your options and dont give up.

Support Points: 340
Badges 
Aqua Belt in SupportYellow Belt in SupportWhite Belt in Support
Offline
By BuggieRN on Mon, 03-18-13, 17:06

I'm new to this website but it is really nice to hear other people who are in the same position as me. I can't remember a time before my pain. I accepted pain as a part of life a long time ago and I'm only 27. I frequently feel betrayed by my body. My chiropractor and massage therapist are miracle workers but I still have a lot of "bad days" One thing thing I have learned is to accept and allow your body and mind to be where it is THAT DAY. I love running and yoga. but there have been days where I can't even get out of bed, and there are days were I spend most of my yoga class in child's pose, and there are days that I can do yoga and run 8 miles. I cherish those days! And usually pay for them the next lol.
My body may be broken, but my spirit is strong!

Do not dwell in the past, do not dream of the future, concentrate the mind on the present moment.
-Buddha

Support Points: 55
Badges 
White Belt in Support
Offline
Groups: Back Pain, Vegan
By kokokoala on Tue, 03-26-13, 10:49

You guys are so wonderful and I apologize for not being around lately. I'm going to be writing another post in a minute as an update and I hope you guys will read it so you can all be up to speed on what's been going on with me. If any of you want to message me to talk individually about Fibro and back pain so we can help support each other better, I am always up for that and I hope everyone is doing well.

Support Someone

Follow supportgroups.com on:

The information provided on SupportGroups.com is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her health professional. This information and interaction provided on this site is solely for informational and educational purposes and does not constitute the practice of medicine. Information on this site does not replace the advice of your physician or other health care provider. Neither the owners or employees of SupportGroups.com nor the author(s) of site content take responsibility for any possible consequences from any treatment, procedure, exercise, dietary modification, application of medication or any other action which results from reading this site. Always speak with your primary health care provider before engaging in any form of self treatment. Please see our Legal Statement for further information.

Login or Register to Post Comments or Start a New Discussion
 

Join SupportGroups.com

Find a Support Group

Top Support Groups

 

All Support Groups

Top Contributors: 1 day

supported